June 10th. It’s May 30th. That means I have over 10 days before I can get my daughter into the children’s hospital for her ultrasound testing. I am a little overwhelmed. The wait is exhausting. I often find myself staring at her wondering is something wrong? Do I not know it? Is she in pain? Is she suffering? My head is freaking out, but my heart stays firm in Christ that every little thing will be alright. Many of you have reached out to me, wondering what is going on, what is happening, is she alright and the truth is we do not have the answers for you at the moment. It is truly a blessing that you all care so much, from the strangers to the immediate family, we love you all.
The truth is, I have only told close friends and family the situation. So I thought I would explain to the everybody elses the situation a little further, so you know what we are going through, and you can pray for Baby K.
When Kinsley was VERY young, probably only a few weeks old, we noticed her ear was a little different. Like she had two lobes. It didn’t seem to bother her, besides the fact she played with the different ear, a little more. We reported it to her doctor immediately after discovering the deformity. (The NICU did not notice it in her hearing test.) They did not seem alarmed at the time and we moved forward with the idea it was nothing more than a growth inconsistency in the womb. Well, fast forward to her nine month appointment, the doctor seemed more concerned about that ear this time around. Her doctor explained to me that our ears are formed from the urinary tract when babies are developing in the womb. Who knew, right? Well now, she is concerned that her kidneys might be effected based on all the extra tissue her ear has. They scheduled us to see a specialist at Scottish Rite (which if you don’t live in Atlanta is the Children’s Hospital here) and go in for an ultrasound accompanied with additional hearing tests. So we learned that the best case scenario would be that she has to have plastic surgery, performed by a pediatric plastic surgeon to remove the extra tissue or lobe around the ear. Worst case scenario, she has something wrong with her kidneys or urinary tract and we move from there. Flashingback to her NICU days, when she was born, many of you know, she had an extremely accelerated heart rate. She was stripped from us, and sent down there almost immediately. However, once she stabilized, they released her to us without figuring out the cause. I am praying that whatever was causing the infection or accelerated heart rate is not because of kidney malfunction or any thing of the sort.
We do not have answers right now, nothing could be wrong, or there could be a lot wrong, we just do not know. We are asking you to join us in continued prayer for her, as we get through these VERY long last 10 days without answers.
Baby K and Me
7 thoughts on “Can I Deal…?”
Not knowing is so scary. Just the waiting….ugh. I lack patience bigtime, so I completely get what you are going through (well, you know, to a point). 😉
I’m praying for your sweetie pie little girl and also for you and your family, that you have peace through it all. ❤
Btw, it's nice to meet you, Georgia neighbor! 🙂
Thank you so much for your kind words! The not knowing is the worst part hands down! It is nice to meet you as we’ll! Always good to meet another Atlantian!
You’re welcome. Please keep us posted! ❤
Also, check this out: https://www.youtube.com/watch?v=pjyIoZFffsI Awesome sermon on fear.
Oh man, waiting is definitely the hardest part. HUGS to both of you and I will be keeping you in my thoughts!
Thank you so much! We are so thankful for the prayers.
We will be praying for you all….especially your beautiful baby girl. It is so difficult not being able to help our babies pain if they have diaper rash, much less something that can be so much more. Our Lord will lay his healing hands on her and help her along the way. We will continue praying through your whole journey. Stay strong girl and know he doesn’t give us anything we cannot handle. Thank you for sharing with all of us “else’s” lol. 💜🎀👣👶